I’m going to deviate from the topic of pre-birth planning – or am I? – to share a personal matter with you. For more than six years I’ve been dealing with a serious physical illness: mold toxicity. I would like to share my experience with you in the hope that it may be helpful to those of you who face mysterious, undiagnosed physical symptoms as I once did.
The onset was insidious, beginning with shorter, lighter, less restful sleep. I already knew that I had sleep apnea, so I purchased a CPAP machine . . . which did nothing to help me sleep better. Over time my sleep became worse and worse. Often I would wake up at 3 am and not be able to fall back asleep. When this happened several days in a row, as it frequently did, the fatigue was overwhelming.
Then neurologic symptoms developed. At first, it was a tingling sensation in my lower arms and legs and on occasion a feeling that my toes were on fire. Over a period of a few years, the tingling moved from my lower to my upper extremities. Then I noticed that I became short of breath much more easily.
Matters came to a head on a trip to New Zealand. After carrying two heavy suitcases up three flight of stairs, I was suddenly barely able to move or think. I sat immobile in a chair for hours, knowing that I had no energy for movement of any kind. Worse, my thought process slowed dramatically; I could scarcely plan what to do next. I later learned that this is what’s known as post-exertional malaise, a symptom of mold toxicity.
In the home in which my wife and I live, my office is on the lower level. There’s only one flight of stairs between levels. Things were so bad at one point that my wife and I had to plan when I was going to leave my office for the day . . . because I could only go back up the stairs once in a day!
It took over five years for the symptoms to progress in this manner. During that time period, I went from doctor to doctor, none of who were able to help me.
Initially, the most likely diagnoses were pre-diabetes or diabetes. I was worked up for those, and they were ruled out.
The next several most likely diagnoses were various autoimmune disorders. I was worked up for those, and they were ruled out. The doctor who evaluated me for the autoimmune disorders then dismissed my symptoms as due to “stress.”
The next several diagnoses were various neurologic disorders. I underwent testing – some of which was quite painful – for those, and they were ruled out.
The next most likely diagnosis was Chronic Fatigue Syndrome. I had a Skype consult with an expert in CFS, Dr. Courtney Craig, a brilliant and very caring person. At the end of the hour, she said, “Well, you don’t have CFS, but you might want to look into mold toxicity. It presents in a similar way.” I thought, “Mold toxicity? No, it can’t be!” As it turned out, Dr. Craig was right. She literally saved my life; I doubt if I would have ever gotten to that diagnosis without her. You can reach her through her web site http://www.drcourtneycraig.com.
After the call with Dr. Craig, I found an article online in which the author had surveyed many people with mold toxicity and asked them which doctor had helped the most. The ten physicians most often mentioned in the survey were profiled in this article. I showed the article to my wife, who got a strong intuitive hit regarding one of the physicians, Dr. Neil Nathan.
Dr. Nathan had me tested for mold toxicity. (The gold standard is a urine test from Real Times Labs.) I was strongly positive for all four types of mycotoxins (mold toxins) measured by the test. Within just a couple of weeks of starting treatment, I was dramatically (about 40%) better. Progress has been much slower since then, but Dr. Nathan and I are hopeful for a full recovery in another 2-3 years.
I view Dr. Nathan as one of the world’s leading experts on mold toxicity. He can be reached at askdrnathan@gmail.com. His web site is http://www.neilnathanmd.com/. I suggest you read his book Toxic. (The documentary Moldy is also a good resource.) Dr. Nathan estimates that as many as two million people in the US alone may have undiagnosed mold toxicity. Mold toxicity can cause many symptoms other than the ones I described, so please do your own research.
One last tidbit: drywall is a fertile breeding ground for mold. If you live in or have lived in a home with drywall, this is something to consider.
I hope that my experience may be of value to some of you. And, for those of you who have already successfully treated mold toxicity, I would like to hear any suggestions you care to offer. Please feel free to write to me at rob.schwartz@yoursoulsplan.com.
Disclaimer: I am not a physician. Nothing that I have written is intended to be taken as medical advice. Please make all medical decisions in consultation with your doctor.